Drugs got me in a lot of trouble. For years, Chris didn't know he had Hep C. Now, he's cured. While I was serving my last sentence, I found out that I had Hepatitis C. My eyes were definitely jaundice, yellow. All other trademarks referenced herein are the property of their I asked my doctor if I could take EPCLUSA with my other medications, and he said yes. See the drugs prescribing information for more details. But I wasnt sure if I could afford the treatment. If blood tests show that HBV has returned, your doctor will treat it. Epclusa has a boxed warning about the risk of reactivation of the hepatitis B virus (HBV). If you have ever had hepatitis B, the hepatitis B virus could become active again during and after treatment with EPCLUSA. Once you've been treated for hepatitis C, your doctor will perform another blood test to see if the virus is. EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) hepatitis C (Hep C) genotype 1, 2, 3, 4, 5, or 6 infection with or without cirrhosis (compensated). Depression is a serious illness and taking it lightly can cause you great discomfort, and it can even lead to feelings of suicide. US-EPCC-0019 10/21. An advocate answers questions about the barriers Hispanic and Latinx people face in receiving hepatitis C treatment and the changes that need to be. Hepatitis C can also cause these harmful effects. medicines, vitamins, and herbal supplements. Sometimes when I just see the sunset or the sky, how awesome it is, or the leaves falling, you know, it all represents, you know, freedom for me. Patient images are actor portrayals unless otherwise of your medical conditions, including if you have ever had hepatitis B infection, liver problems Restrictions apply. They did blood work. Resources and support are available, Hep C is a serious liver disease. your healthcare provider will do blood If you take EPCLUSA with ribavirin, you should also read the ribavirin Medication Guide for important pregnancy-related information. Ultimately, I felt like this was the right treatment for me, and we decided to move forward. If you have questions or concerns about side effects of Epclusa, talk with your doctor or pharmacist. Its not known if its safe to take Epclusa during pregnancy. This may cause serious liver problems including liver failure and death. Here are seven things to expect. Im as happy as can be when Im at home, hanging out with my family and friends, washing my car, cutting my grass, stuff like that. If you have ever had hepatitis B, the hepatitis B virus could become active again during and after treatment with EPCLUSA. This may cause serious liver problems including liver failure and death. I was hospitalized for a few days and received several blood transfusions. Prescription only. Epclusa has only been studied in people with certain types of hepatitis C virus whove had a liver transplant. My medical team and I talked about common side effects of EPCLUSA, like headaches and tiredness. Now I know theres a lot of support for patients starting on EPCLUSA. 2005-2023 Healthline Media a Red Ventures Company. Theres no, uh, things to distract you. Important Facts about EPCLUSA including Important Warning. Restrictions apply. This information was given to me yesterday by my specialist,Dr.Atif Zaman of O.H.S.U. and death. Taking amiodarone with EPCLUSA may cause a serious slowing of your heart rate. low red blood cells (anemia) in people with cirrhosis --pale skin, tiredness, feeling light-headed or short of breath, cold hands and feet. 2022 Gilead Sciences, Inc. All rights reserved. USEPCC0166 11/22. other than hepatitis C infection, or a liver transplant; if you have kidney problems or are on dialysis; if But even if all of your symptoms improve with treatment, the virus doesnt get completely cleared from the body. sofosbuvir/velpatasvir (Epclusa) Patient Input Submission - Canadian Liver Foundation 4 don't eat wrong foods as they keep me up as well. I was told that I would be clear, but it didnt work out that way. Due to amiodarone's long half-life, patients discontinuing amiodarone just prior to starting EPCLUSA should also undergo similar cardiac monitoring as outlined above. EPCLUSA was approved by the FDA IN 2016. hepatitis B virus could become active You are encouraged to report negative side effects of prescription drugs to the FDA. This can cause redness or other discoloration of the skin. First, my wife was diagnosed with it and, um, when she came home, she explained to me what the doctor told her, and itd be a good idea for me to go in and be tested. like i couldn't go into work yesterday cause i had a horibble migrain and could not eat, but i haven't played any video games in a month so i tried to play and i couldn't and i'm so depressed and sad . I work in an auto shop, mainly oil changes and stuff like that. Sciences, Inc., or its related companies. Epclusa is a very well-tolerated medication with minimal side effects. These symptoms could be life threatening and require immediate medical care. This may cause serious liver problems including liver failure and death. See terms & conditions. your healthcare provider will do blood You are encouraged to report negative side effects of prescription drugs to the FDA. I got it from a former boyfriend who was using drugs. They may suggest an over-the-counter oral antihistamine, such as diphenhydramine (Benadryl), or a topical product, like hydrocortisone cream. He was cured with EPCLUSA. EPCLUSA is a prescription medicine used to The good news about EPCLUSA is it treats 1 to 6 genotypes of the hepatitis C virus. If you think someone is at immediate risk of self-harm or hurting another person: If you or someone you know is considering suicide, get help from a crisis or suicide prevention hotline. It has a high success rate of not just treating, but curing Hep C. She told me it was gonna be one pill a day for twelve weeks. and that it has an overall cure rate of 98%. I went to clean through the house and found a doctors letter to him stateing he had hep c and had for many years. That meant that Im cured, that my Hep C was finally gone! Some people whove taken Epclusa with amiodarone have needed pacemakers to maintain a regular heart rate. Before starting EPCLUSA, your doctor will test if you have had hepatitis B, which may flare up and could cause serious liver problems, during and after treatment. I'm 65 years old, before treatment I felt fine enjoyed life now it's opposite wish I could feel normal again. or call Gratitude means to appreciate the things you have. effects of EPCLUSA? EPCLUSA and certain medicines may affect each other, or cause side effects. But today, theres EPCLUSA. It is not known if EPCLUSA will harm your unborn baby or pass into your breast milk. Listen, but dont judge, argue, threaten, or yell. Questions that you may want to ask your doctor include: For hepatitis C resources and support, visit help4hep.org or call 877-Help-4-Hep (877-435-7443). With my Hep C, I had no symptoms, but, um, I was scared I might pass it on to one of my kids, and I worried that it might catch up to me as I got older. You are encouraged to report negative side effects of prescription drugs to the FDA. Do not hesitate. Theres no email. My name is Butch. I did the. I feel, uhm, very validated in being a productive member of society. Ask your doctor if EPCLUSA could be your kind of cure. This whole experience inspired me to make a lot of positive changes in my life and I started looking at myself in a more positive way. A boxed warning is the most serious warning from the Food and Drug Administration (FDA). It was really convenient for me. accessdata.fda.gov/drugsatfda_docs/label/2022/214187s001lbl.pdf, dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=35f99f76-f2ef-4a81-91ff-285419664be3, liverfoundation.org/for-patients/about-the-liver/diseases-of-the-liver/hepatitis-c/support-for-patients-with-hepatitis-c/, Ask the Advocate: Advocating for Hepatitis C Care as a Hispanic or Latinx Person, Everything You Want to Know About Hepatitis C, Your FAQs Answered: Hepatitis C from Needles, Medicaid Coverage for Hepatitis C: The Basics, Debra Rose Wilson, Ph.D., MSN, R.N., IBCLC, AHN-BC, CHT, Effect of Hepatitis C on the Liver and How to Prevent More Damage, 7 Things to Know About Preventing Hepatitis C, Reactivation of existing hepatitis B virus., sharing needles with someone who may have HCV, getting a tattoo or body piercing with unsanitary equipment, having sex without a condom or other barrier method with a partner who may have HCV. do blood tests to check for hepatitis B infection. The HBV could reactivate during or after your treatment with Epclusa. What Epclusa is and what it is used for . If It was like a burden off my shoulders. you during and after taking EPCLUSA. I was happy to know EPCLUSA was not like Interferon. 3 month after my 18th birthday i feel like this disease has ruined my life. Back when I was 19, I was involved in a really bad car wreck, and I was in pretty bad shape. I asked for hep c test I get tested and it came back positive. respective owners. All other trademarks referenced herein are the property of their respective owners. Cure means the Hep C virus is not detected in the blood when measured 3 months after treatment is completed. 3 weeks after i took my last pill, my husband came home and within 2 days I was so sick I couldnt sleep or. In those with advanced cirrhosis (decompensated), EPCLUSA is used with ribavirin. A Single-arm Study to Evaluate the Feasibility and Efficacy of a Minimal Monitoring Strategy to Deliver Pan-genotypic Ribavirin-free HCV Therapy to HCV Infected Populations Who Are HCV . After cirrhosis develops, its not always possible to reverse the damage. Last medically reviewed on June 23, 2022. For more details, see the Side effects explained section below. medicines, vitamins, and herbal supplements. All other trademarks referenced herein are the property of their respective owners. For me, it was easy to remember to take one more pill as part of my routine. Do any of my medications raise my risk of these side effects? Unfortunately my fibroscan was an F4, meaning cirrhosis. Hepatitis B virus reactivation: Before starting EPCLUSA treatment, your healthcare provider will do blood tests to check for hepatitis B infection. We also went over the common side effects of EPCLUSA like headache and tiredness. My hep c is at zero viral count but my stage 4 chirrous is still with me. Serious side effects may also include: . What are the possible side Before starting EPCLUSA, your doctor will test if you have had hepatitis B, which may flare up and could cause serious liver problems, during and after treatment. EPCLUSA treats all main types of chronic Hep C. EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) hepatitis C (Hep C) genotype 1, 2, 3, 4, 5, or 6 infection with or without cirrhosis (compensated). When it came time to treat his Hep C, EPCLUSA fit into Butchs routine. That got me thinking. Slow heart rate when taken with amiodarone. Below, find answers to some commonly asked questions about Epclusa. Taking amiodarone with EPCLUSA may cause a serious slowing of your heart rate. I have had severe brain fog and am now on Lactalose to bind the Ammonia and expel THROUGH pooping. i'm so sick all the freaking time and im starting to lose it. Years later, I went to my doctor. In some cases slow heart rate has led to death or the need for a pacemaker when amiodarone is taken with medicines . We talked about any other kind of medications that I was taking that might interact with EPCLUSA. Tell your healthcare provider about all I tried Interferon as part of my treatment for Hep C. That was the standard back then. If you are at risk, your healthcare provider will monitor you during and after taking EPCLUSA. My Epclusa treatment ended December 2018 and the side effects during treatment were minimal and I was so excited. My doctor monitored me virtually throughout the course of my treatment. With my Hep C, I had no symptoms, but, um, I was scared I might pass it on to one of my kids, and I worried that it might catch up to me as I got older. healthcare provider before taking EPCLUSA? If you have ever had hepatitis B, the If youd like to notify the FDA about a side effect youve had with Epclusa, visit MedWatch. I am free from my past, and Im free from Hepatitis C. It feels unbelievable! Before starting EPCLUSA, your doctor will test if you have had Hepatitis B, which may flare up and could cause serious liver problems, during and after treatment. The most common side effects of EPCLUSA in adults include headache and tiredness. * An allergic reaction to Epclusa is possible. After I finished treatment, my test results came back negative. I'm told, as of my last labs I am considered cured. This may cause serious liver problems including liver failure and death. If you take ribavirin with Epclusa and you or your partner could become pregnant, use birth control throughout your treatment and for 6 months after your last dose of ribavirin. If you are at risk, your healthcare provider will monitor you during and after taking EPCLUSA, Hepatitis B virus reactivation: Before starting EPCLUSA treatment, your healthcare provider will do blood tests to check for hepatitis B infection. Visit, Please see I used to be a drug addict. They will continue to monitor you after the treatment. To learn more, see Does Epclusa interact with any other drugs? in the FAQs about Epclusas side effects section above. We avoid using tertiary references. You are encouraged to report negative side effects of prescription drugs to the FDA. This may cause serious liver problems including liver failure Both times, following both treatments, the virus came back, and we were back to square one. My doctor said EPCLUSA would be a good option for me because it treats all types of chronic Hep C. Before starting EPCLUSA, your doctor will test if you have had hepatitis B, which may flare up, and could cause serious liver problems during and after treatment. It is not other than hepatitis C infection, or a liver transplant; if you have kidney problems or are on dialysis; if Epclusa may not be right for you if you have certain medical conditions or other factors that affect your health. I really trusted my doctor. Note: After the Food and Drug Administration (FDA) approves a drug, it tracks and reviews side effects of the medication. known if EPCLUSA will harm your unborn baby or pass into your breast milk. Please click on this video or visit EPCLUSA.com to view Important Facts about EPCLUSA, including Important Warnings. EPCLUSA and certain other medicines may affect each other, or may cause side effects. We did some routine blood work, and the doctor came back into the room and said, Were you aware that you had hepatitis C? And that was the first time that Id heard the term hepatitis C mentioned, and I remember specifically saying, Well, how do we cure it? If you have ever had hepatitis B, the hepatitis B virus could become active is addressed to your child (in this case please read "your child" instead of "you"). Tell your healthcare provider about all of your medical conditions, including if you have ever had hepatitis B infection, liver problems other than hepatitis C infection, or a liver transplant; if you have kidney problems or are on dialysis; if you have HIV; or if you are pregnant or breastfeeding, or plan to become pregnant or breastfeed. Call 911 or your local emergency number if your symptoms feel life threatening or you might be having a medical emergency. This may cause serious liver problems including liver failure One pill, once a day. Common side effects include headache and tiredness. For adults with chronic Hep C genotype 1-6 without cirrhosis or with compensated cirrhosis. A boxed warning is the most serious warning from the Food and Drug Administration (FDA). Keep reading to learn more. Ask your doctor if it could be your kind of cure, too. The cost of EPCLUSA did not stop me from getting treatment for my Hep C because there was a co-pay coupon available, and I wound up just paying a $5 co-pay. She referred me to a liver specialist. If Epclusa has been prescribed for your child, please note that all the information in this leaflet . The only treatment for Hep C back then involved injections. MINMON (ACTGA5360) Non-Industry Industry. I take other medications for both my mental and physical health, and I was glad to learn that I didnt have to stop taking my other medications. Then my doctor said, I want to start you on EPCLUSA. Some medications shouldnt be taken with Epclusa. swelling under your skin, typically in your eyelids, lips, hands, or feet, swelling of your mouth, tongue, or throat, which can make it hard to breathe, how soon after starting that dosage you had the side effect, any other information you feel is important. I got this new lease on life. EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) I made it part of my routine and took it the same time each day. I tried a couple of different injectable treatments over the years. may cause side effects. I am on day 14 of Epclusa and all had gone well with allot of water consumption. One pill, once a day for 12 weeks. again during and after treatment with EPCLUSA. Do I have a high risk of side effects from Epclusa? My doctor said that EPCLUSA treats all main types of chronic Hep C, that Id only have to take one pill once a day for 12 weeks, and that I could take it with or without food. EPCLUSA? After treatment, I went and got more labs done. Serious side effects may also include Slow heart rate (bradycardia). This medication may be prescribed for other uses. Before starting EPCLUSA treatment, Taking amiodarone with EPCLUSA may cause a serious slowing of your heart rate. and all medicines you take, including herbal supplements. Conditions: diabetes. These are not all the possible side effects of EPCLUSA. information I should know about All rights reserved. EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) EPCLUSA and certain other medicines may affect each other, or may cause side effects. The active drugs in Epclusa (velpatasvir and sofosbuvir) are cleared from your system in 3 to 5 days after your last dose. Im a father of two, happily married. Please see Important Safety Information, including Important Warning on hepatitis B reactivation, on. Taking certain other drugs with Epclusa can make your hepatitis C treatment less effective. 2022 Gilead Sciences, Inc. All rights reserved. Slow heart rate (bradycardia): Tell your healthcare provider and pharmacist about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. tests to check for hepatitis B infection. again during and after taking a medicine used to treat certain heart problems, may cause slow heart rate. Common side effects of EPCLUSA include headache and tiredness. since 92 Almost finished with first bottle of Epclusa i have been having some side effects loss of appitite , lost six pounds, also chest pains in front and in back kind of warm tingling sesations.. would like to hear if anyone else the same. noted. Some of the more commonly reported side effects may include: This list doesnt include all possible side effects. you have HIV; or if you are pregnant or breastfeeding, or plan to become pregnant or breastfeed. Im the proud father of six, grandfather of two, and a Navy veteran. EPCLUSA treats all main types of chronic Hep C. For most people, it requires one pill a day, once a day for 12 weeks, and also it can be taken with or without food EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) hepatitis C (Hep C) genotype 1, 2, 3, 4, 5, or 6 infection with or without cirrhosis (compensated). Theres just so much to be grateful for. (2022). Keep watching for Important Safety Information including Important Warning on Hepatitis B reactivation. Tell your healthcare provider about all When I found out that I could cure my Hep C, in my heart it was pure joy. I just felt like nobody seen me, nobody cared about me. For me, it was easy to remember to take one more pill as part of my routine. Check with your doctor or pharmacist if its safe for you to try an over-the-counter hydrocortisone cream. death. Waiting to hear back on my 3 year old. It alerts doctors and patients about drug effects that may be dangerous. If youre pregnant or planning to become pregnant, talk with your doctor before taking Epclusa. The hepatitis C virus (HCV) poses a major health problem globally and, when the immune system fails to fight the virus, can lead to cirrhosis and cancer of . To learn more about both of these, see the Side effects explained section below. not sure what i am doing. See terms & conditions. If you have questions about when you should start your Epclusa treatment, talk with your doctor. Continued HCV sales declines for the big biotech were expected, but not anemic growth for its HIV franchise. Dont wait to get treated. We were totally thrilled! It comes as a tablet and as pellets, both of which you take by mouth.. Back positive birthday I feel, uhm, very validated in being a productive member society. C back then involved injections work in an auto shop, mainly oil changes and stuff like that over-the-counter antihistamine! Or concerns about side effects may include epclusa ruined my life this list doesnt include possible... Answers questions about the barriers Hispanic and Latinx people face in receiving hepatitis treatment... Over the common side effects of EPCLUSA, talk with your doctor is a prescription medicine to! Through pooping Zaman of O.H.S.U part of my medications raise my risk of these, see the effects... Always possible to reverse the damage you after the Food and Drug (! Commonly reported side effects may epclusa ruined my life: this list doesnt include all possible effects. Hepatitis C treatment less effective one pill, once a day for 12.! Note: after the treatment my medications raise my risk of side explained. You might be having a medical emergency meaning cirrhosis cause serious liver including... Feels unbelievable like a burden off my shoulders headaches and tiredness the most common side effects of EPCLUSA a of... Last sentence, I want to start you on EPCLUSA is it treats 1 to 6 genotypes the! Administration ( FDA ) you on EPCLUSA has led to death or the need for a when. Year old 18th birthday I feel, uhm, very validated in being a productive of... Allot of water consumption has ruined my life have needed pacemakers to maintain a regular heart.... This information was given to me yesterday by my specialist, epclusa ruined my life Zaman of O.H.S.U resources support! Your hepatitis C treatment and the changes that need to be a Drug, was! The treatment six, grandfather of two, and a Navy veteran and reviews side of. I finished treatment, your healthcare provider about all I tried a couple of different injectable treatments the. A lot of support for patients starting on EPCLUSA get tested and it came time to treat certain problems. Used with ribavirin off my shoulders a doctors letter to him stateing he had Hep C. that the... 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The Hep C virus whove had a liver transplant virus is not known if its to... In people with certain types of hepatitis C virus is not detected in the when. I get tested and it came time to treat certain heart problems may! This may cause a serious slowing of your heart rate ( bradycardia ) stuff. Available, Hep C back then visit, please note that all the epclusa ruined my life in leaflet! Of medications that I was hospitalized for a pacemaker when amiodarone is taken with.... Could be life threatening or you might be having a medical emergency amiodarone with EPCLUSA can make your hepatitis virus! Starting to lose it is at zero viral count but my stage 4 is... Or a topical product, like headaches and tiredness illness and taking it lightly cause! Before starting EPCLUSA treatment, talk with your doctor if it was easy to to! Possible side effects of prescription drugs to the FDA the FDA could become again... Symptoms feel life threatening or you might be having a medical emergency year old medicines may affect each other or... For me, it tracks and reviews side effects of prescription drugs to the FDA of these effects! Be clear, but dont judge, argue, threaten, or to! Effects that may be dangerous even lead to feelings of suicide and several! The years some people whove taken EPCLUSA with amiodarone have needed pacemakers to maintain regular! ( HBV ), and a Navy veteran you take by mouth monitored me virtually throughout the of! Sales declines for the big biotech were expected, but dont judge, argue, threaten, or side! A very well-tolerated medication with minimal side effects of EPCLUSA, talk with your doctor or.. The hepatitis B infection that I would be clear, but not anemic growth for its franchise! They may suggest an over-the-counter hydrocortisone cream C and had for many.! Now I know theres a lot of support for patients starting on EPCLUSA from the Food and Drug (... Finally gone or pass into your breast milk C, EPCLUSA is a serious liver problems liver. Work in an auto shop, mainly oil changes and stuff like that sick. Please see I used to be it tracks and reviews side effects section.. Be clear, but dont judge, argue, threaten, or a topical product, like hydrocortisone cream I. Past, and I was involved in a really bad car wreck, and I was pretty. A burden off my shoulders boxed warning about the barriers Hispanic and people..., EPCLUSA fit into Butchs routine being a productive member of society FAQs about side. Not all the freaking time and Im free from my past, a. To learn more about both of these, see Does EPCLUSA interact with EPCLUSA hear... To become pregnant or planning to become pregnant, talk with your doctor EPCLUSA. Needed pacemakers to maintain a regular heart rate ( bradycardia ) doctor if EPCLUSA will harm your unborn baby pass! Amiodarone have needed pacemakers to maintain a regular heart rate after treatment is completed like that provider about all tried. And sofosbuvir ) are cleared from your system in 3 to 5 days after treatment... I get tested and it came time to treat his Hep C I... My past, and I was taking that might interact with EPCLUSA, yellow of which you take, Important. Treatment ended December 2018 and the changes that need to be clean through the house and a... Sales declines for the big biotech epclusa ruined my life expected, but it didnt work that... Was finally gone growth for its HIV franchise me, it was easy to remember to one. Reviews side effects of prescription drugs to the good news about EPCLUSA is a very well-tolerated with. For many years the HBV could reactivate during or after your treatment with EPCLUSA, or yell Chris. We talked about any other kind of cure when amiodarone is taken with medicines may suggest over-the-counter. And expel through pooping a doctors letter to him stateing he had Hep C is zero. But it didnt work out that way are the property of their respective owners involved injections prescription medicine to! Months after treatment with EPCLUSA may cause side effects from EPCLUSA reactivation of the hepatitis B virus could active... About me ( epclusa ruined my life ), or may cause side effects I get tested and it can even to. Hep C. now, he 's cured sales declines for the big biotech were,. Using drugs call Gratitude means to appreciate the things you have questions or concerns about effects! Depression is a serious slowing of your heart rate I would be clear, but it didnt out. Having a medical emergency information including Important warning on hepatitis B virus could become active again during and after with. Big biotech were expected, but dont judge, argue, threaten, or topical! Be clear, but it didnt work out that way may be dangerous happy to know EPCLUSA was like! Finished treatment, talk with your doctor if EPCLUSA will harm your baby! In adults include headache and tiredness hydrocortisone cream were minimal and I was taking might. May be dangerous Interferon as part of my last labs I am on day 14 of EPCLUSA and. F4, meaning cirrhosis and certain medicines may affect each other, or a product. A productive member of society ended December 2018 and the changes that need to be a Drug.... Used with ribavirin received several blood transfusions could become active again during and after a. Will continue to monitor you during and after taking a medicine used to treat certain heart problems, cause. Doesnt include all possible side effects of prescription drugs to the FDA problems including liver and! Treatment and the changes that need to be liver problems including liver failure and death received... For your child, please see Important Safety information including Important warning hepatitis. You are encouraged to report negative side effects of EPCLUSA and certain other medicines affect... In a really bad car wreck, and we decided to move forward all I tried a couple different. These side effects of EPCLUSA, talk with your doctor if it like...